Links
Hemophilia
Bloodline
www.bloodline.net
Centers for Disease Control and Prevention (CDC), Hematologic
Diseases Branch
http://www.cdc.gov/ncbddd/hbd/default.htm
The Coalition for Hemophilia B
www.boygenius.com/cfb/
Hemophilia Emergency Care
www.hemophiliaemergencycare.com
Hemophilia Federation of America
www.hemophiliafed.org
Hemophilia Forum
www.hemophilia-forum.org
Hemophilia Nurses
www.hemophilianurse.org
Hemophilia Region VI
www.hemophiliaregion6.org
Hemophilia Region IX
www.hemophiliaregion9.org
Inalex Communications
www.inalex.com
LA Kelley Communications
www.kelleycom.com
National Heart, Lung, and Blood Institute (NHLBI)
www.nhlbi.nih.gov
World Federation of Hemophilia
www.wfh.og
Women with Bleeding Disorders
All about Bleeding (CSL Behring-sponsored site for patients with
VWD)
www.allaboutbleeding.com
Project Red Flag (NHF)
www.projectredflag.org
Shemophilia
www.shemophilia.org
Platelet Disorders:
Glanzmann Thrombasthenia
www.glanzmanns.com
Hermansky-Pudlak Syndrome Network Inc.
www.hpsnetwork.org
ITP Society
www.ultranet.com/~itpsoc
Platelet Disorder Support Association
www.pdsa.org
Thrombophilia
National Alliance for Thrombosis and Thrombophilia
www.nattinfo.org
Factor V Leiden Thrombophilia Support Page
www.factorvleiden.org
Physician Membership Associations
American Society of
Hematology
www.hematology.org
American Society of Pediatric Hematology/Oncology
www.aspho.org
International Society of Thrombosis & Hemostasis
www.med.unc.edu/isth/
International Organizations
Canadian Hemophilia Society
www.hemophilia.ca
Haemophilia Foundation of Australia
www.haemophilia.org.au
Haemophilia Foundation of New Zealand
www.haemophilia.org.nz
Haemophilia Society (UK)
www.haemophilia.org.uk
World Federation of Hemophilia
www.wfh.org
Blood Safety
American Association of Blood Banks
www.aabb.org
America’s Blood Centers
www.americasblood.org
FDA Center for Biologics Evaluation and Research
www.fda.gov/cber
International Blood Plasma News
www.marketingresearchbureau.com/ibpn.htm
National Notification Center
www.notify1.com
Patient Notification System
www.patientnotificationsystem.org
Plasma Protein Therapeutics Association
www.plasmatherapeutics.org
vCJD (Variant Creutzfeldt-Jakob Disease)
http://www.cdc.gov/ncidod/dvrd/vcjd/
Hepatitis
American Liver Foundation
www.liverfoundation.org
CDC Hepatitis Branch
www.cdc.gov/hepatitis
HCV Advocate
www.hcvadvocate.org
Hep C Connection
www.hepc-connection.org
Hepatitis B Foundation
www.hepb.org
Hepatitis Foundation International
www.hepfi.org
Hepatitis Magazine
www.hepatitismagazine.com
National Digestive Diseases Diseases Information Clearinghouse
(NDDIC)
http://digestive.niddk.nih.gov/ddiseases/topics/hepatitis.asp
HIV/AIDS
AEGIS (AIDS Education Global Information System)
www.aegis.com
AIDS Info
www.aidsinfo.nih.gov
American Foundation for AIDS Research
www.amfar.org/index.html
The Body
www.thebody.com
CDC HIV/AIDS
www.cdc.gov/hiv
HIV and Hepatitis
www.hivandhepatitis.com
HIV Insite
hivinsite.ucsf.edu/InSite
HIV + Solid Organ Transplant Multi-Site Study
www.hivtransplant.com
Immune Deficiency Foundation
www.primaryimmune.org
JAMA HIV/AIDS Resource Center
www.ama-assn.org/special/hiv/
National AIDS Treatment Advocacy Project
www.natap.org
National Institute of Allergy and Infectious Diseases
www.niaid.nih.gov/default.htm
Project Inform
www.projectinform.org
Gene Therapy
American Society of Gene Therapy
www.asgt.org
Biotechnology Industry Organization (BIO)
www.bio.org
European Society of Gene Therapy
www.esgt.org
Human Genome Project Information
www.ornl.gov/hgmis/medicine/genetherapy.html
National Human Genome Research Institute
www.genome.gov
National Library of Medicine of NIH
www.nlm.nih.gov/medlineplus/genesandgenetherapy.html
NIH Office of Biotechnology Activities
www4.od.nih.gov/oba
GeMCRIS
www.gemcris.od.nih.gov